STARK RAVING HEALTH
Uncovering hidden rare disease populations and accelerating breakthrough treatments with specialized recruitment strategies.
When traditional methods fail, our solution reaches qualified patients with precision, connecting science with humanity by balancing protocol requirements with an understanding of the patient's journey. Through authentic storytelling, we build trust that is essential for participation — consistently supporting enrollment for these challenging clinical trials.
We document the rare disease patient journey — from symptoms and diagnosis to treatment decisions. This identifies decision points, emotional triggers, and information needs specific to each condition. We identify moments to engage patients when they're most receptive, addressing their concerns and aligning clinical trial opportunities with patient needs.
We create tailored materials addressing the unique information needs of rare disease communities. Our specialized writers develop materials that explain protocols in accessible language while acknowledging patient and cargiver experiences. Our educational content and decision guides build understanding and trust while supporting informed consent.
We implement specialized media approaches for rare disease audiences, focusing on micro-channels where these communities gather. Our media specialists combine precise targeting with strategic placements in medical channels and advocacy platforms to reach high-probability participants efficiently.
Our established relationships with specialized patient advocacy partners provide access to hard-to-reach rare disease populations. We leverage teams already embedded in rare disease ecosystems who bring pre-existing relationships with advocacy groups, patient leaders, and community forums. Through these collaborations, we rapidly deploy community-endorsed recruitment initiatives that reach qualified patients through trusted channels.
We establish seamless coordination between all stakeholders in the rare disease recruitment process. We implement specialized workflows that address the unique complexities of rare disease studies, ensuring all team members share consistent messaging. This unified approach eliminates siloed decision-making that typically delays rare disease studies, creating an agile team environment that can quickly respond to enrollment challenges.